Held
each October, Disability Employment Awareness Month is a national
campaign that raises awareness about disability employment issues. The
opportunity to earn a living and be self-supporting is a broadly held
goal by Americans. Work is a foundation of stability for individuals and
can give one’s life meaning and purpose. Unfortunately, the rate and
level of employment for people with disabilities is staggeringly low.
Labor force participation is 22% for people with disabilities as
compared to 69% for people without disabilities.
Monday, October 7, 2013
Friday, October 4, 2013
VETERANS FIELD GUIDE TO GOVERNMENT SHUTDOWN – Field guide 20130927
Oh No! Our Government has shut down!!
What now?
Here is the response given by the VA for all Veterans who are in the process of getting a wheelchair van: "It’s simple; business as usual."
For a complete guide to ‘what now’ during this Government shutdown:
VETERANS FIELD GUIDE TO GOVERNMENT SHUTDOWN
All VA medical facilities and clinics will remain fully operational, including:
1. In patient Care
2. Out patient Care
3. Prescriptions
4. Surgeries
5. DentalTreatment
6. ExtendedCare
7. MentalHealthCare
8. NursingHomeCare
9. SpecialHealthCare Services
forWomenVeterans
10. VetCenters
• Military Sexual TraumaCounseling
• Readjustment Counseling Services(VetCenters)
• Interments in National Cemeteries will continue,but may be on a reduced schedule.
Contact NCA’s Scheduling Office at 1-800-535-1117
• MyHealtheVet–All Services
• Readjustment Counseling Services(VetCenters)
• Interments in National Cemeteries will continue,but may be on a reduced schedule.
Contact NCA’s Scheduling Office at 1-800-535-1117
• MyHealtheVet–All Services
IMPORTANT
Claims
processing and payments in the compensation,pension, education, and
vocational rehabilitation programs are anticipated to continue
through late October.
However, in the event of a prolonged shutdown, claims processing and payments in these programs would be suspended when available funding is exhausted. NCA will process applications for headstones, markers, medallions.
• Insurance Processing
• Home Loan Processing
• NCA will notify VBAof death for benefit actions
• VBA Call Centers will be operational except for education
• Acquisitions Logistics Center will accept and fill prosthetics supply orders
• Office of Small and Disadvantaged Small Businesses
• VeteransCrisis Line
• Home Loan Processing
• NCA will notify VBAof death for benefit actions
• VBA Call Centers will be operational except for education
• Acquisitions Logistics Center will accept and fill prosthetics supply orders
• Office of Small and Disadvantaged Small Businesses
• VeteransCrisis Line
Operational National Phone Numbers for Veterans
• VA National Call Center: 1-800-827-1000
• All VA Medical Facilities & Services: (411 or http://www2.va.gov/directory/guide/division_flsh.asp?dnum=1 )
• Coaching into Care Call Center for Family Members of Veterans: 1-888-823-7458
• Debt Management Center: (Collection of NonMedical Debts): 1-800-827-0648
• Homeless Prevention Line:
1-877-4AID VET (877-424-3838)
• Home Loans: 1-888-244-6711
• Insurance: 1-800-669-8477
• Mammography Helpline: 1-888-492-7844
• Meds by Mail: 1-888-385-0235 (or) 1-866-229-7389
• National Caregiver Support Line:1-855-260-3274
• NCA’s Scheduling Office: 1-800-535-1117
• Veterans Crisis Line: 1-800-273-TALK (8255)
• Women Veterans Call Center: 1-855-VA-WOMEN (1-855-829-6636)
• Federal Service for the Deaf: 711
• Vet Center Combat Call Center: 1-877-WAR-VETS
• Discrimination: 1-888-737-3361
• Denver Acquisition and Logistics Center: 1-303-273-6200
• Health Benefits Customer Service: 1-877-222-VETS (8387).
• CHAMPVA: 1-800-733-8387
• Children of Women Vietnam Veterans; Foreign Medical Program; Spina Bifida Health Care Program: 1-877-345-8179 (or) 1-888-820-1756
• VA National Call Center: 1-800-827-1000
• All VA Medical Facilities & Services: (411 or http://www2.va.gov/directory/guide/division_flsh.asp?dnum=1 )
• Coaching into Care Call Center for Family Members of Veterans: 1-888-823-7458
• Debt Management Center: (Collection of NonMedical Debts): 1-800-827-0648
• Homeless Prevention Line:
1-877-4AID VET (877-424-3838)
• Home Loans: 1-888-244-6711
• Insurance: 1-800-669-8477
• Mammography Helpline: 1-888-492-7844
• Meds by Mail: 1-888-385-0235 (or) 1-866-229-7389
• National Caregiver Support Line:1-855-260-3274
• NCA’s Scheduling Office: 1-800-535-1117
• Veterans Crisis Line: 1-800-273-TALK (8255)
• Women Veterans Call Center: 1-855-VA-WOMEN (1-855-829-6636)
• Federal Service for the Deaf: 711
• Vet Center Combat Call Center: 1-877-WAR-VETS
• Discrimination: 1-888-737-3361
• Denver Acquisition and Logistics Center: 1-303-273-6200
• Health Benefits Customer Service: 1-877-222-VETS (8387).
• CHAMPVA: 1-800-733-8387
• Children of Women Vietnam Veterans; Foreign Medical Program; Spina Bifida Health Care Program: 1-877-345-8179 (or) 1-888-820-1756
So there you have it folks, for now it is business as usual! Please share this with your friends.
Tuesday, October 1, 2013
October is Rett Syndrome Awareness Month
What is Rett Syndrome?
Rett syndrome is a
postnatal neurological disorder seen almost always in girls, but can be rarely seen in boys. It is not a degenerative disorder.
Rett syndrome is caused
by mutations on the X chromosome on a gene called MECP2. There are more than
200 different mutations found on the MECP2 gene. Most of these mutations are
found in eight different “hot spots.”
Rett syndrome strikes
all racial and ethnic groups, and occurs worldwide in 1 of every 10,000 to
23,000 female births.
Rett syndrome causes
problems in brain function that are responsible for cognitive, sensory,
emotional, motor and autonomic function. These can include learning, speech,
sensory sensations, mood, movement, breathing, cardiac function, and even
chewing, swallowing, and digestion.
Rett syndrome symptoms
appear after an early period of apparently normal or near normal development
until six to eighteen months of life, when there is a slowing down or
stagnation of skills. A period of regression then follows when she loses
communication skills and purposeful use of her hands. Soon, stereotyped hand
movements such as handwashing, gait disturbances, and slowing of the normal
rate of head growth become apparent. Other problems may include seizures and
disorganized breathing patterns while she is awake. In the early years, there
may be a period of isolation or withdrawal when she is irritable and cries
inconsolably. Over time, motor problems may increase, but in general,
irritability lessens and eye contact and communication improve.
Rett syndrome can
present with a wide range of disability ranging from mild to severe. The course
and severity of Rett syndrome is determined by the location, type and severity
of her mutation and X-inactivation. Therefore, two girls of the same age with
the same mutation can appear quite different.
Rett syndrome is
most often misdiagnosed as autism, cerebral palsy, or non-specific
developmental delay. In the past, making the correct diagnosis called not only
for a long list of diagnostic tests and procedures to rule out other disorders,
but it also took from months to years waiting to confirm the diagnosis as new
symptoms appeared over time. Today, we have a simple blood test to confirm the
diagnosis. However, since we know that the MECP2 mutation is also seen in other
disorders, the presence of the MECP2 mutation in itself is not enough for the
diagnosis of Rett syndrome. Diagnosis requires either the presence of the
mutation (a molecular diagnosis) or fulfillment of the diagnostic criteria (a
clinical diagnosis, based on signs and symptoms that you can observe) or both.
Below is a list of labs to share with your ordering physician that can do the
MECP2 sequencing + deletion analysis, and the list of diagnostic criteria.
Testing and Diagnosis
Rett syndrome is most often misdiagnosed as autism, cerebral palsy, or non-specific developmental delay. In the past, making the correct diagnosis called not only for a long list of diagnostic tests and procedures to rule out other disorders, but it also took from months to years waiting to confirm the diagnosis as new symptoms appeared over time. Today, we have a simple blood test to confirm the diagnosis. However, since we know that the MECP2 mutation is also seen in other disorders, the presence of the MECP2 mutation in itself is not enough for the diagnosis of Rett syndrome. Diagnosis requires either the presence of the mutation (a molecular diagnosis) or fulfillment of the diagnostic criteria (a clinical diagnosis, based on signs and symptoms that you can observe) or both. Below is a list of labs to share with your ordering physician that can do the MECP2 sequencing + deletion analysis, and the list of diagnostic criteria.Monday, September 30, 2013
October is Down Syndrome Awareness Month
October
is Down Syndrome Awareness Month, a chance to spread awareness. During
the month of October, we celebrate people with Down syndrome and make
people aware of our abilities and accomplishments. It’s not about
celebrating disabilities, it’s about celebrating abilities.
We can learn all about our history. We have a right to speak out about what it’s like to have Down syndrome and to learn the real story of people like us. People with Down syndrome and their loved ones can spread awareness about Down syndrome by going to their local Buddy Walk® and we can speak out about our needs. This is how we advocate. Our parents can teach us about education and how to advocate for ourselves – and give us love, support and encouragement.
Remember that this is a very important month – we have to spread awareness about Down syndrome and learn more about ourselves.
- See more at: http://www.ndss.org/About-NDSS/Our-Team/Ambassadors/Goodwill-Ambassador/Straight-Talk-with-Chris-Burke/Down-Syndrome-Awareness-Month/#sthash.FFMCmj5E.dpuf
We can learn all about our history. We have a right to speak out about what it’s like to have Down syndrome and to learn the real story of people like us. People with Down syndrome and their loved ones can spread awareness about Down syndrome by going to their local Buddy Walk® and we can speak out about our needs. This is how we advocate. Our parents can teach us about education and how to advocate for ourselves – and give us love, support and encouragement.
Remember that this is a very important month – we have to spread awareness about Down syndrome and learn more about ourselves.
- See more at: http://www.ndss.org/About-NDSS/Our-Team/Ambassadors/Goodwill-Ambassador/Straight-Talk-with-Chris-Burke/Down-Syndrome-Awareness-Month/#sthash.FFMCmj5E.dpuf
It’s not about celebrating disabilities;
it’s about celebrating abilities.
·························································
What Is Down Syndrome?
Down
syndrome (or Down's syndrome) is a chromosomal disorder caused by an error in cell
division that results in an extra 21st chromosome. The condition leads to
impairments in both cognitive ability and physical growth that range from mild
to moderate developmental disabilities. Through a series of screenings and
tests, Down syndrome can be detected before and after a baby is born.
The only factor known to affect the probability of having a baby with Down syndrome is maternal age. That is, less than one in 1,000 pregnancies for mothers less than 30 years of age results in a baby with Down syndrome. For mothers who are 44 years of age, about 1 in 35 pregnancies results in a baby with Down syndrome. Because younger women generally have more children, about 75 - 80% of children with Down syndrome are born to younger women.
The only factor known to affect the probability of having a baby with Down syndrome is maternal age. That is, less than one in 1,000 pregnancies for mothers less than 30 years of age results in a baby with Down syndrome. For mothers who are 44 years of age, about 1 in 35 pregnancies results in a baby with Down syndrome. Because younger women generally have more children, about 75 - 80% of children with Down syndrome are born to younger women.
What
causes Down syndrome?
Down syndrome occurs because of an
abnormality characterized by an extra copy of genetic material on all or part
of the 21st chromosome. Every cell in the body contains genes that are grouped
along chromosomes in the cell's nucleus or center. There are normally 46
chromosomes in each cell, 23 inherited from your mother and 23 from your
father. When some or all of a person's cells have an extra full or partial copy
of chromosome 21, the result is Down syndrome.
The most common form of Down syndrome is known as Trisomy 21, a condition where individuals have 47 chromosomes in each cell instead of 46. This is caused by an error in cell division called nondisjunction, which leaves a sperm or egg cell with an extra copy of chromosome 21 before or at conception. Trisomy 21 accounts for 95% of Down syndrome cases, with 88% originating from nondisjunction of the mother's egg cell.
The remaining 5% of Down syndrome cases are due to conditions called mosaicism and translocation. Mosaic Down syndrome results when some cells in the body are normal while others have Trisomy 21. Robertsonian translocation occurs when part of chromosome 21 breaks off during cell division and attaches to another chromosome (usually chromosome 14). The presence of this extra part of chromosome 21 causes Down some syndrome characteristics. Although a person with a translocation may appear physically normal, he or she has a greater risk of producing a child with an extra 21st chromosome.
The most common form of Down syndrome is known as Trisomy 21, a condition where individuals have 47 chromosomes in each cell instead of 46. This is caused by an error in cell division called nondisjunction, which leaves a sperm or egg cell with an extra copy of chromosome 21 before or at conception. Trisomy 21 accounts for 95% of Down syndrome cases, with 88% originating from nondisjunction of the mother's egg cell.
The remaining 5% of Down syndrome cases are due to conditions called mosaicism and translocation. Mosaic Down syndrome results when some cells in the body are normal while others have Trisomy 21. Robertsonian translocation occurs when part of chromosome 21 breaks off during cell division and attaches to another chromosome (usually chromosome 14). The presence of this extra part of chromosome 21 causes Down some syndrome characteristics. Although a person with a translocation may appear physically normal, he or she has a greater risk of producing a child with an extra 21st chromosome.
Thursday, September 19, 2013
2013 Boston Abilities Expo
Come See VMi New England at the Boston Abilities Expo this Weekend!
The Boston Convention & Exhibition
Center, Hall C - Booth 237

Are
you in the greater Boston area and want to know more about Wheelchair Vans and
Mobility equipment? If yes, come to the Boston Abilities Expo this Weekend
(September 20-22 2013) to see us, alongside VMI, to help spread awareness!!
We,
along side VMI, are leaders in the manufacturing and distribution of wheelchair
accessible vans worldwide. From minivans to full-size conversions, VMI
continues to lead through innovation, stability, superior customer service and
dedication to quality - much like us. Together we provide a service that is not
found with any other conversion manufacturer.
For
more information come and see us this weekend where we will have all leading wheelchair vans on display! We hope to see you there!
Thursday, September 12, 2013
Facts You Might Not Know About Spinal Cord Injuries
People with SCI can’t sweat
The spinal cord may be
the organ that helps the body feel and move, but it also operates your sweat. Becoming
hotter and hotter is what some people with higher spinal cord injuries have to
go through until they finally cool off their body from the outside, either by
dumping cold water on their skin or basking in the AC. Paraplegics however can
usually sweat. Not being able to sweat applies generally to quads.
82% are men
Out of everyone on the
planet with a spinal cord injury, 82% are male. That’s quite the disparity
between men vs. women and most think feel it’s because men are bigger
risk-takers than women. It’s hard to argue with that. Motor vehicle crashes,
sports injuries, falls, men find themselves in these situations a lot more
often.
Before the 1940s, the
life expectancy was two years
There may not be a cure
for spinal injuries yet, but scientists have come a long way in improving
long-term prospects for people with spinal cord injuries. Prospects before the
1940s were not good. It was before antibiotic use began to be
widespread, which mean most died before the two year mark from slow deaths
related to untreatable infections; bladder, blood and skin. Paralyzed WWII
veterans are some of the first people in human history to move onto full lives
post-injury.
Less sensation, less
body hair
One of the few bonuses
of having a spinal cord injury (if you could call it that) is less body hair.
Researchers have recently discovered that body hair grows better when it’s
getting feedback from the brain. They’re not sure why, but it’s a phenomenon
that’s been observed in most people with a spinal cord injury.
Some people can’t
cough
Some people who are quadriplegic
may be able to emit a tiny cough, but that’s about as fierce of a cough most of
us can do. Reason why – spinal cord injuries don’t just effect the legs and
arms, they can affect the chest wall muscles; everything becomes paralyzed
below the level of injury. This is why respiratory failure remains the number
one cause of death among people with higher spinal cord injuries. Coughing up
phlegm is critical when fighting off colds, but the good news – cough-assist
devices and techniques like these.
They pee through their
belly buttons
Everyone thinks they
know the going-to-the-bathroom secret (catheters). But there’s one big secret
mainstream society has no idea is possible—a surgery that allows you to pee
through the belly button. That’s right, a hole is put in the belly button, with
a new urinary conduit to boot. All you need to do is insert in a catheter, put
a drainage cup between your legs, and you’re good to go. Doctor Mitrofanoff invented
this fascinating surgery.
Their legs can still
move
Mainstream society
thinks paralysis equates to the legs being absolutely frozen in time—but this
is not the case. Some people’s paralyzed legs can move and shake a lot on their
own; anything causing pain below the level of injury can cause it. Lower level
paraplegics however rarely get spasms.
Wednesday, September 4, 2013
Spinal Cord Injury Information - Will You Stand For Those Who Can't?
Spinal Cord Injury Facts & Statistics
Who Do Spinal Cord Injuries Affect in the United States?
- 250,000 Americans are spinal cord injured.
- 52% of spinal cord injured individuals are considered paraplegic and 47% quadriplegic.
- Approximately 11,000 new injuries occur each year.
- 82% are male.
- 56% of injuries occur between the ages of 16 and 30.
- The average age of spinal cord injured person is 31.
- SCI injuries are most commonly caused by:
- Vehicular accidents 37%
- Violence 28%
- Falls 21%
- Sports-related 6%
- Other 8%
- The most rapidly increasing cause of injuries is due to violence; vehicular accident injuries are decreasing in number.
- 89% of all SCI individuals are discharged from hospitals to a private home, 4.3% are discharged to nursing homes.
- Only 52% of SCI individuals are covered by private health insurance at time of injury.
What Do Spinal Cord Injuries Really Cost?
- Length of initial hospitalization following injury in acute care units: 15 days
- Average stay in rehabilitation unit: 44 days
- Initial hospitalization costs following injury: $140,000
- Average first year expenses for a SCI injury (all groups): $198,000
- First year expenses for paraplegics: $152,000
- First year expenses for quadriplegics: $417,000
- Average lifetime costs for paraplegics, age of injury 25: $428,000
- Average lifetime costs for quadriplegics, age of injury 25: $1.35 million
- Percentage of SCI individuals who are covered by private health insurance at time of injury 52%
- Percentage of SCI individuals unemployed eight years after injury 63%. (Note: unemployment rate when this article was written was 4.7%)
Source: The University of Alabama National Spinal Cord Injury Statistical Center - March 2002
Number of New Injuries Per Year
32 injuries per million population or 7800 injuries in the US each year
Most researchers feel that these numbers represent significant
under- reporting. Injuries not recorded include cases where the patient
instantaneously or soon after the injury, cases with little or no
remaining neurological deficit, and people who have neurologic problems
secondary to trauma, but are not classified as SCI. Researchers estimate
that an additional 20 cases per million (4860 per year) die before
reaching the hospital.
Total Number of People with SCI
- 82% male, 18% female
- Highest per capita rate of injury occurs between ages 16-30
- Average age at injury - 33.4
- Median age at injury - 26
- Mode (most frequent) age at injury 19
- Motor vehicle accidents are the leading cause of SCI (44%), followed by acts of violence (24%),falls (22%) and sports (8%), other (2%)
- 2/3 of sports injuries are from diving
- Falls overtake motor vehicles as leading cause after age 45
- Acts of violence and sports cause less injuries as age increases
- Acts of violence have overtaken falls as the second most common source of spinal cord injury
- Marital status at injury:
- Single 53%
- Married 31%
- Divorced 9%
- Other 7%
- 5 years post-injury:
- 88% of single people with SCI were still single vs. 65% of the non-SCI population
- 81% of married people with SCI were still married vs. 89% of the non-SCI population
- Employment status among persons between 16 and 59 years of age at injury:
- Employed 58.8%
- Unemployed 41.2%
(includes: students, retired, and homemakers) - Employed 8 years post-injury:
- Paraplegic 34.4%
- Quadriplegic 24.3%
People who return to work in the first year post-injury usually
return to the same job for the same employer. People who return to work
after the first year post-injury either worked for different employers
or were students who found work.
How are spinal injuries caused?
Until the most recent figures were released by NSCIA in
August, 1995, these were considered as the major causes of spinal cord
injuries. See Answer to # 4 and Dr. Wise YoungĂs statistics in Section 2
for all the most recent demographics. One of the most surprising
findings is that acts of violence have now overtaken falls as the second
most common source of spinal cord injury, as of the 1995 findings.
Previous To 1995:
- Motor vehicles 48%
- Falls 21%
- Sports 14% (66% of which are caused in diving accidents)
- Violence 15%
- Other 2%
The Injury
Since 1988, 45% of all injuries have been complete, 55%
incomplete. Complete injuries result in total loss of sensation and
function below the injury level. Incomplete injuries result in partial
loss. "Complete" does not necessarily mean the cord has been severed.
Each of the above categories can occur in paraplegia and quadriplegia.
Except for the incomplete-Preserved motor (functional), no more
than 0.9% fully recover, although all can improve from the initial
diagnosis.
Overall, slightly more than 1/2 of all injuries result in
quadriplegia. However, the proportion of quadriplegics increase markedly
after age 45, comprising 2/3 of all injuries after age 60 and 87% of
all injuries after age 75.
92% of all sports injuries result in quadriplegia.
92% of all sports injuries result in quadriplegia.
Most people with neurologically complete lesions above C-3 die
before receiving medical treatment. Those who survive are usually
dependent on mechanical respirators to breathe.
50% of all cases have other injuries associated with the spinal cord injury.
Most Frequent Neurological Category
Quadriplegia, incomplete 31.2%
Paraplegia, complete 28.2%
Paraplegia, incomplete 23.1%
Quadriplegia, complete 17.5%
Paraplegia, incomplete 23.1%
Quadriplegia, complete 17.5%
Hospitalization
(Important: This section applies only to individuals who were
admitted to one of the hospitals designated as "Model" SCI centers by
the National Institute of Disability and Rehabilitation Research.)
Over 37% of all cases admitted to the Spinal Cord Injury System
sponsored by the NIDRR arrive within 24 hours of injury. The mean time
between injury and admission is 6 days.
Only 10-15% of all people with injuries are admitted to the NIDRR
SCI system. The remainder go to CARF facilities or to general hospitals
in their local community.
It is now known that the length of stay and hospital charges for
acute care and initial rehabilitation are higher for cases where
admission to the SCI system is delayed beyond 24 hours. Average length
of stay (1992):
Quadriplegics 95 days
Paraplegics 67 days
All 79 days
Paraplegics 67 days
All 79 days
Average charges (1990 dollars) Note: Specific cases are considerably higher.
Quadriplegics $118,900
Paraplegics $ 85,100
All $ 99,553
Paraplegics $ 85,100
All $ 99,553
Source of payment acute care:
Private Insurance 53%
Medicaid 25%
Self-pay 1%
Vocational Rehab 14%
Worker's Comp 12%
Medicare 5%
Other 2%
Medicaid 25%
Self-pay 1%
Vocational Rehab 14%
Worker's Comp 12%
Medicare 5%
Other 2%
Ongoing medical care: (Many people have more than one source of payment.)
Private Insurance 43%
Medicare 25%
Self-pay 2%
Medicaid 31%
Worker's Compensation 11%
Vocational Rehab 16%
Medicare 25%
Self-pay 2%
Medicaid 31%
Worker's Compensation 11%
Vocational Rehab 16%
After the Hospital
Residence at discharge
Private Residence 92%
Nursing Home 4%
Other Hospital 2%
Group Home 2%
Nursing Home 4%
Other Hospital 2%
Group Home 2%
There is no apparent relationship between severity of injury and
nursing home admission, indicating that admission is caused by other
factors (i.e. family can't take care of person, medical complications,
etc.) Nursing home admission is more common among elderly persons.
Each year 1/3 to 1/2 of all people with SCI are re-admitted to
the hospital. There is no difference in the rate of re-admissions
between persons with paraplegia and quadriplegia, but there is a
difference between the rate for those with complete and incomplete
injuries.
Survival
Overall, 85% of SCI patients who survive the first 24 hours are
still alive 10 years later, compared with 98% of the non-SCI population
given similar age and sex.
Causes of Death
The most common cause of death is respiratory ailment, whereas,
in the past it was renal failure. An increasing number of people with
SCI are dying of unrelated causes such as cancer or cardiovascular
disease, similar to that of the general population. Mortality rates are
significantly higher during the first year after injury than during
subsequent years.
Every
48 minutes someone in the U.S. is paralyzed from a spinal cord injury.
Millions worldwide are living with paralysis as a result and living
with the knowledge that there is currently no cure for their injury.
In an effort to raise awareness about the critical need for better treatments and preventive measures, September has been designated National Spinal Cord Injury Awareness Month by
the U.S. Senate, the result of a resolution co-sponsored by Sens. Marco
Rubio (R-FL) and Bill Nelson (D-FL). To bolster the resolution’s
message, we are launching an awareness campaign lasting the entire month
of September.
The goal of the campaign is to ask “Will You Stand Up For Those Who Can’t?” The
intent is to create a national conversation about the devastation of
paralysis, and to bring this condition to the forefront of public
awareness.
“Paralysis
does not discriminate. People need to realize that paralysis can
happen to anyone at any time,” said Nick Buoniconti. “But the reality
of today’s statistics can’t be disputed. Every 48 minutes another
person in the U.S. will become paralyzed. That is simply unacceptable.
Each of us must do what we can to make a difference. I am personally
asking you, will you stand up for those who can’t and do one or more of
the following?”
We are asking our friends and supporters to:
Make a donation in
honor of a loved one, caregiver, scientist or organization who is
working to improve the life of those injured. If you would like to host
a small fundraising party at your house, please email bfinfo@med.miami.edu and we will send you more information.
“The
inspiring work of The Miami Project to Cure Paralysis has touched the
lives of millions of young athletes, accident victims and troops in
harm’s way and I commend them for it,” said Sen. Rubio. “By designating
September as National Spinal Cord Injury Awareness Month, I hope we can
further educate the public about how crippling accidents can be
prevented while promoting the important work being done to help victims
walk again.”
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